What a busy seven days it has been. Melinda and Sally, Jemesii, Peter and his girlfriend Caroline and my brother Bink and sister John have all visited over the previous week. It has been nice enjoyable, a lot has been completed and I’m exhausted.
Nevertheless, I even have had extra baseline vitality. A perform of restarting TNO155? Maybe.
This morning I used to be scheduled for set up of a PleurX-cath–monetary help permitted. My respiratory has additionally been some improved and I went to the appointment hopeful that I must be turned away once more–however this time for lack of necessity.
And certainly a Pleur-x was deemed pointless at this junture. As an alternative I had one other thoracentesis which yielded 150 ml of serosanguinous fluid.
Final night time I realized that TPX-0131 could be at MGH no later than early subsequent week. I do know my oncologist has been working tirelessly on my behalf to forestall extra delays, and my buddy Rob Densen and his buddies at Senator Markey’s workplace obtained concerned as properly. Ethical of the story? Select your oncologist’s, your pals, and their pals rigorously.
To place a dot on that i, I shall take my last dose of TNO155 tonight—and my last dose of lorlatinib on Sunday as I start washout. After which, subsequent Thursday, my lead in dose of TPX-0131.
There have been moments (hours, days) within the previous weeks the place I felt I used to be down for the rely. I don’t really feel that manner at present. Raggedy and lifelike in regards to the combat that lies forward, however assured that I’m going to get a shot at it.
xo