I’m exhausted. Spent, if you’ll. Subsequently as we speak’s weblog is a reduce and paste–taken from a message I despatched out to my siblings and a few shut mates.
One other replace. Not the type I like to offer. I hadad scans and noticed each of my oncologists as we speak. Briefly, it’s nonetheless a shitshow in my left lung. Pleural effusion, partial collapse, potential pneumonia and an excellent aggressive most cancers (Alice in contrast scans that have been eight days aside and it had grown). And, sadly, my fever returned as we speak–nonetheless low grade however not signal.
Subsequent week I shall have a drain put in in my left lung and on the identical day, I shall begin again on the identical drug that possible triggered the pleural effusion–TNO-155–at a decrease dose and with the hope that if my lung blows up once more, we are able to management it with the drain.
My oncologist utilized for (and acquired) compassionate use for the 4th gen ALK inhibitor that I had been precluded from (as a result of too many prior remedies)–TPX-0131. It is a nice situation as she will get to put in writing the protocol. Nevertheless, with paperwork it will likely be 4 to 5 weeks till I can begin. Our objective–bluntly put—is to attempt to maintain me alive that lengthy.
That is brutal, I do know. Nevertheless, I believed it greatest to allow you to all know. If issues don’t change course, I’m wrapping all of it up and ahead of I anticipated.
Please understand how a lot I really like you all and in addition that I’m going to proceed to struggle like hell. I simply want a miracle 
And–an ask–please take care of my youngsters. They’re having a very robust time–Peter instructed me tonight he’s barely holding it collectively. In the long run, it doesn’t matter how a lot time you’ve needed to put together. None of us are prepared.
xo