Affected person Influencers (Half I) – Autoimmune Join

With the explosion of social media in at the moment’s technological panorama, affected person voices are more and more talking up in rheumatology. 

Throughout platforms, numerous autoimmune sufferers have stepped up as leaders and influencers, utilizing their platforms to share private tales and empower others on their journeys. 

As a affected person and affected person advocate myself, I’m extraordinarily appreciative of the work that these people put into sharing tales and invaluable recommendation. Moreover, in my position because the Chief Affected person Officer of rheumission, I’ve had the honour of connecting with quite a few autoimmune affected person advocates and influencers. These people are leaving an indelible mark on the world of AIIDs (Autoimmune and Inflammatory Ailments) by way of their experience in outreach, training, and help.

Health and Wellness Advocates

Inspirational figures like Ashley Nicole (IG @ashnic_rawarriorfitness), Liv Bathroom (IG @movetoliv), and Megan Tovar (IG @itsmegzz_fitness) are among the many dynamic people I’ve had the privilege of participating with. By means of their teaching companies, they empower girls with rheumatoid arthritis to beat joint ache and embrace vibrant, wholesome existence.

As a private coach, former bodybuilder, and affected person advocate, Ashley Nicole elevates and empowers RA girls to alleviate joint ache by way of her faith-based therapeutic program specializing in mild motion, stretching, mobility, and wholesome vitamin. 

Recognized with younger arthritis on the age of 4 and uveitis from age eight, motion coach Liv Bathroom brings a contemporary perspective to health by way of adaptable motion and mindset teaching along with writing educating posts for well being platforms such because the Healthline. 

Megan Tovar is a Power Ache Therapist and nutritionist who shares in rheumission’s targets for constructing affected person belief and dealing in direction of long-term remission by way of her 1:1 Get Match with Arthritis program. 

Power Sickness Bloggers and Life-style Advocates

Along with health champions, power sickness bloggers like Kate Mitchell (IG @katethealmostgreat) and Stefanie Remson (IG @rheumatoidarthritiscoach) play a pivotal position locally. Sharing their journeys, they provide invaluable ideas and instruments for managing autoimmune situations.

Dwelling with RA, POTS, and endometriosis, power sickness affected person, advocate, and blogger Kate Mitchell curates a power sickness life-style weblog and weekly publication, offering a wealth of recommendation on well being administration and life-style changes. 

Stefanie Remson, a nurse practitioner dwelling with RA, educates the neighborhood about power sickness and administration by way of her on-line particular person teaching companies at RheumatoidArthritisCoach.com along with insightful weblog posts. 

Conclusion

As we rejoice these voices, myself and rheumission acknowledge and applaud people like Ashley Nicole, Liv Bathroom, Megan Tovar, Kate Mitchell, Stefanie Remson, and numerous others who’ve come collectively to create a supportive ecosystem that empowers sufferers and drives progress in autoimmune care. Past participating with communities, these fantastic people have harnessed the facility of social media to empower not solely their very own voices, however the voices of numerous different sufferers.

Within the second a part of our influencer dialogue, we’ll delve into the forerunners of affected person advocacy and healthcare innovation, and their pivotal position in reshaping the autoimmune panorama. Test it out right here!

Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda

We strategy these thought management posts from our multi-lens views. 

• • DrBonnie360: Digital/digital well being marketing consultant, medical dentist, Wall Road analyst, affected person & advocate.  

• • Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.

• • Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
  • Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA

Strategic Consulting & Skilled Providers

We offer skilled consulting companies to funding, rising, and established firms. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and cut back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine the most effective of digital, standard, and practical medication into AIID care supply.

• • We assist our shoppers leverage digital improvements into V1C for AIID sufferers.

• • Our subject material experience contains: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.

• • We now have a long time of expertise in finance, advertising and marketing, and communications for dozens of healthcare and life sciences organizations, rising and established.

• • Our backgrounds embrace medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.

Contact us that can assist you map your market panorama and perceive sufferers’ unmet wants. Additionally, we can assist you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital classes. We additionally create compelling content material: articles, weblog posts, collateral, e-books, internet copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.

Principal Picture Credit score: Micro Biz Magazine