Our purpose is to enhance the standard of lifetime of ALK-positive sufferers and rework an incurable illness right into a continual and hopefully curable one. We’re dedicated to bettering entry to state-of-the-art healthcare, scientific trials, medicine, and therapies for all European sufferers.
APEU is the most important group of organized ALK-positive sufferers in Europe, with so far 13 members from Norway, Sweden, Finland, Denmark, Germany, The Netherlands, United Kingdom, Switzerland, Belgium, France, Italy, Spain and Greece who’re collectively representing over 1,700 sufferers and care givers.
We provide our members a platform to collaborate and share details about ALK-positive sufferers based mostly in Europe. We offer a useful resource for members to seek out EU-based trials accepting ALK-positive most cancers sufferers. Our EU Analysis and Skilled Map is a device for members to seek out European ALK-positive most cancers researchers and consultants worldwide.
With ALK Constructive Outreach we coordinate efforts round elevating consciousness and constructing partnerships for analysis and advocacy with resolution makers on the European Fee degree.
We take all stakeholders into consideration in our work. This consists of illustration of ALK-positive sufferers and help for funding proposals to advance analysis and therapeutic modalities that will result in scientific trials, bettering the standard of life and life expectancy for ALK-positive sufferers.
Cross Border Networking Occasions deliver collectively EU-based and worldwide consultants and researchers to foster collaborations. With our publication we hold stakeholders knowledgeable about ALK-positive most cancers associated analysis, analysis, administration, and therapeutics in Europe and internationally. We provide a single level of data, contact, and entry to ALK-positive sufferers based mostly in Europe for the European Fee, nationwide and transnational coverage makers, and pharma.
To make the voice of ALK-positive sufferers even louder in Europe, we’re searching for extra European member organizations, affected person teams and dedicated lung most cancers advocates to hitch us in fulfilling our imaginative and prescient: Uniting ALK-positive sufferers in direction of a remedy!
Are you curious about changing into a member, do you wish to help us, or do you’ve got any questions?
Please get in contact with Nicoline Ehrhardt: contact@alkpositiveeurope.org
Our Board: Anke Niekus (The Netherlands), Nicoline Ehrhardt (Germany), Patty Saccenti (Italy), Pilar Muñoz (Spain), Andrej Krivda (Switzerland), Johanna Isakkila (Finland), Afroditi Konidari (Greece).
Analysis Committee led by Afroditi Konidari & Stian Andre Agnes, Advocacy Committee led by Pilar Muñoz & Nicoline Ehrhardt
Article Writer: Nicoline Ehrhardt (Germany)