DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
This discussion board, with over 30,000 customers, helps folks with Lupus to attach, share experiences, and construct a neighborhood. Whereas it welcomes these searching for prognosis, people with different autoimmune circumstances, caretakers and family members, it prioritizes lupus sufferers, sustaining respect in a protected area for everybody.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
This subreddit offers a supportive setting for people residing with RA and associated inflammatory illnesses. Whereas it doesn’t provide medical recommendation, it fosters dialogue and neighborhood amongst members. Analysis posts additionally have to be accredited by moderators earlier than being shared.
This discussion board, with over 30,000 customers, helps folks with Lupus to attach, share experiences, and construct a neighborhood. Whereas it welcomes these searching for prognosis, people with different autoimmune circumstances, caretakers and family members, it prioritizes lupus sufferers, sustaining respect in a protected area for everybody.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
Dwelling with Lupus helps over 12,000 people navigating their Lupus journey. Like different pages, this can be a personal group the place you will need to get approval earlier than becoming a member of.
Reddit Communities
Though extra idiosyncratic than different platforms, Reddit may also be helpful for sufferers, with a couple of distinctive benefits. Reddit communities’ various and idiosyncratic person bases, and up/downvoting system promotes the most well-liked info to point out you first. It might be smart to fact-check something you learn on Reddit (true for different platforms, too, if much less so).
This subreddit offers a supportive setting for people residing with RA and associated inflammatory illnesses. Whereas it doesn’t provide medical recommendation, it fosters dialogue and neighborhood amongst members. Analysis posts additionally have to be accredited by moderators earlier than being shared.
This discussion board, with over 30,000 customers, helps folks with Lupus to attach, share experiences, and construct a neighborhood. Whereas it welcomes these searching for prognosis, people with different autoimmune circumstances, caretakers and family members, it prioritizes lupus sufferers, sustaining respect in a protected area for everybody.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
The objective of the Lupus Assist group is to offer assist, empathy, recommendation, and assist for folks residing with Lupus. This can be a personal group, so you’ll have to get permission to affix from the admin.
Dwelling with Lupus helps over 12,000 people navigating their Lupus journey. Like different pages, this can be a personal group the place you will need to get approval earlier than becoming a member of.
Reddit Communities
Though extra idiosyncratic than different platforms, Reddit may also be helpful for sufferers, with a couple of distinctive benefits. Reddit communities’ various and idiosyncratic person bases, and up/downvoting system promotes the most well-liked info to point out you first. It might be smart to fact-check something you learn on Reddit (true for different platforms, too, if much less so).
This subreddit offers a supportive setting for people residing with RA and associated inflammatory illnesses. Whereas it doesn’t provide medical recommendation, it fosters dialogue and neighborhood amongst members. Analysis posts additionally have to be accredited by moderators earlier than being shared.
This discussion board, with over 30,000 customers, helps folks with Lupus to attach, share experiences, and construct a neighborhood. Whereas it welcomes these searching for prognosis, people with different autoimmune circumstances, caretakers and family members, it prioritizes lupus sufferers, sustaining respect in a protected area for everybody.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
Consisting of about 10,000 folks, This assist group for these residing with psoriatic arthritis is personal, so you will need to await approval earlier than formally becoming a member of.
The objective of the Lupus Assist group is to offer assist, empathy, recommendation, and assist for folks residing with Lupus. This can be a personal group, so you’ll have to get permission to affix from the admin.
Dwelling with Lupus helps over 12,000 people navigating their Lupus journey. Like different pages, this can be a personal group the place you will need to get approval earlier than becoming a member of.
Reddit Communities
Though extra idiosyncratic than different platforms, Reddit may also be helpful for sufferers, with a couple of distinctive benefits. Reddit communities’ various and idiosyncratic person bases, and up/downvoting system promotes the most well-liked info to point out you first. It might be smart to fact-check something you learn on Reddit (true for different platforms, too, if much less so).
This subreddit offers a supportive setting for people residing with RA and associated inflammatory illnesses. Whereas it doesn’t provide medical recommendation, it fosters dialogue and neighborhood amongst members. Analysis posts additionally have to be accredited by moderators earlier than being shared.
This discussion board, with over 30,000 customers, helps folks with Lupus to attach, share experiences, and construct a neighborhood. Whereas it welcomes these searching for prognosis, people with different autoimmune circumstances, caretakers and family members, it prioritizes lupus sufferers, sustaining respect in a protected area for everybody.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
This can be a Fb group of about 20,000 members and is a neighborhood the place folks can share their tales about their PsA journeys, along with searching for recommendation/assist from others.
Consisting of about 10,000 folks, This assist group for these residing with psoriatic arthritis is personal, so you will need to await approval earlier than formally becoming a member of.
The objective of the Lupus Assist group is to offer assist, empathy, recommendation, and assist for folks residing with Lupus. This can be a personal group, so you’ll have to get permission to affix from the admin.
Dwelling with Lupus helps over 12,000 people navigating their Lupus journey. Like different pages, this can be a personal group the place you will need to get approval earlier than becoming a member of.
Reddit Communities
Though extra idiosyncratic than different platforms, Reddit may also be helpful for sufferers, with a couple of distinctive benefits. Reddit communities’ various and idiosyncratic person bases, and up/downvoting system promotes the most well-liked info to point out you first. It might be smart to fact-check something you learn on Reddit (true for different platforms, too, if much less so).
This subreddit offers a supportive setting for people residing with RA and associated inflammatory illnesses. Whereas it doesn’t provide medical recommendation, it fosters dialogue and neighborhood amongst members. Analysis posts additionally have to be accredited by moderators earlier than being shared.
This discussion board, with over 30,000 customers, helps folks with Lupus to attach, share experiences, and construct a neighborhood. Whereas it welcomes these searching for prognosis, people with different autoimmune circumstances, caretakers and family members, it prioritizes lupus sufferers, sustaining respect in a protected area for everybody.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
This group includes a large neighborhood of individuals with psoriatic arthritis, notably those that select to “LIVE WITH” it, whereas additionally providing an area for many who might know somebody with the situation. Comprising round 4,000 folks, this group is meant as an area of encouragement and resource-seeking.
This can be a Fb group of about 20,000 members and is a neighborhood the place folks can share their tales about their PsA journeys, along with searching for recommendation/assist from others.
Consisting of about 10,000 folks, This assist group for these residing with psoriatic arthritis is personal, so you will need to await approval earlier than formally becoming a member of.
The objective of the Lupus Assist group is to offer assist, empathy, recommendation, and assist for folks residing with Lupus. This can be a personal group, so you’ll have to get permission to affix from the admin.
Dwelling with Lupus helps over 12,000 people navigating their Lupus journey. Like different pages, this can be a personal group the place you will need to get approval earlier than becoming a member of.
Reddit Communities
Though extra idiosyncratic than different platforms, Reddit may also be helpful for sufferers, with a couple of distinctive benefits. Reddit communities’ various and idiosyncratic person bases, and up/downvoting system promotes the most well-liked info to point out you first. It might be smart to fact-check something you learn on Reddit (true for different platforms, too, if much less so).
This subreddit offers a supportive setting for people residing with RA and associated inflammatory illnesses. Whereas it doesn’t provide medical recommendation, it fosters dialogue and neighborhood amongst members. Analysis posts additionally have to be accredited by moderators earlier than being shared.
This discussion board, with over 30,000 customers, helps folks with Lupus to attach, share experiences, and construct a neighborhood. Whereas it welcomes these searching for prognosis, people with different autoimmune circumstances, caretakers and family members, it prioritizes lupus sufferers, sustaining respect in a protected area for everybody.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
This Fb group is a supportive neighborhood of over 40,000 people with RA and their family members. It gives a platform for sharing experiences, providing assist, and exchanging details about coping methods and managing signs. This can be a personal group, so you will need to be a part of after which wait to be accepted by the admin.
This group includes a large neighborhood of individuals with psoriatic arthritis, notably those that select to “LIVE WITH” it, whereas additionally providing an area for many who might know somebody with the situation. Comprising round 4,000 folks, this group is meant as an area of encouragement and resource-seeking.
This can be a Fb group of about 20,000 members and is a neighborhood the place folks can share their tales about their PsA journeys, along with searching for recommendation/assist from others.
Consisting of about 10,000 folks, This assist group for these residing with psoriatic arthritis is personal, so you will need to await approval earlier than formally becoming a member of.
The objective of the Lupus Assist group is to offer assist, empathy, recommendation, and assist for folks residing with Lupus. This can be a personal group, so you’ll have to get permission to affix from the admin.
Dwelling with Lupus helps over 12,000 people navigating their Lupus journey. Like different pages, this can be a personal group the place you will need to get approval earlier than becoming a member of.
Reddit Communities
Though extra idiosyncratic than different platforms, Reddit may also be helpful for sufferers, with a couple of distinctive benefits. Reddit communities’ various and idiosyncratic person bases, and up/downvoting system promotes the most well-liked info to point out you first. It might be smart to fact-check something you learn on Reddit (true for different platforms, too, if much less so).
This subreddit offers a supportive setting for people residing with RA and associated inflammatory illnesses. Whereas it doesn’t provide medical recommendation, it fosters dialogue and neighborhood amongst members. Analysis posts additionally have to be accredited by moderators earlier than being shared.
This discussion board, with over 30,000 customers, helps folks with Lupus to attach, share experiences, and construct a neighborhood. Whereas it welcomes these searching for prognosis, people with different autoimmune circumstances, caretakers and family members, it prioritizes lupus sufferers, sustaining respect in a protected area for everybody.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
This group, composed of practically 8,000 members, particularly caters to moms who battle with RA. The neighborhood is concentrated on serving to moms with ache and illness administration whereas caring for kids, providing an area to vent frustrations and search assist and assist.
This Fb group is a supportive neighborhood of over 40,000 people with RA and their family members. It gives a platform for sharing experiences, providing assist, and exchanging details about coping methods and managing signs. This can be a personal group, so you will need to be a part of after which wait to be accepted by the admin.
This group includes a large neighborhood of individuals with psoriatic arthritis, notably those that select to “LIVE WITH” it, whereas additionally providing an area for many who might know somebody with the situation. Comprising round 4,000 folks, this group is meant as an area of encouragement and resource-seeking.
This can be a Fb group of about 20,000 members and is a neighborhood the place folks can share their tales about their PsA journeys, along with searching for recommendation/assist from others.
Consisting of about 10,000 folks, This assist group for these residing with psoriatic arthritis is personal, so you will need to await approval earlier than formally becoming a member of.
The objective of the Lupus Assist group is to offer assist, empathy, recommendation, and assist for folks residing with Lupus. This can be a personal group, so you’ll have to get permission to affix from the admin.
Dwelling with Lupus helps over 12,000 people navigating their Lupus journey. Like different pages, this can be a personal group the place you will need to get approval earlier than becoming a member of.
Reddit Communities
Though extra idiosyncratic than different platforms, Reddit may also be helpful for sufferers, with a couple of distinctive benefits. Reddit communities’ various and idiosyncratic person bases, and up/downvoting system promotes the most well-liked info to point out you first. It might be smart to fact-check something you learn on Reddit (true for different platforms, too, if much less so).
This subreddit offers a supportive setting for people residing with RA and associated inflammatory illnesses. Whereas it doesn’t provide medical recommendation, it fosters dialogue and neighborhood amongst members. Analysis posts additionally have to be accredited by moderators earlier than being shared.
This discussion board, with over 30,000 customers, helps folks with Lupus to attach, share experiences, and construct a neighborhood. Whereas it welcomes these searching for prognosis, people with different autoimmune circumstances, caretakers and family members, it prioritizes lupus sufferers, sustaining respect in a protected area for everybody.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
Having devoted many years to autoimmune affected person advocacy, I’ve witnessed the exceptional emergence of affected person voices in rheumatology, supported by the instruments of the digital world, most straight by novel communication modes akin to social media that assist on-line communities.
Thus, my virtual-first, digital rheumatology clinic rheumission was constructed on a basis particularly attuned to listening to affected person voices. We’re constructing our distinctive patient-first technique and have labored tirelessly to make sure a collaborative setting the place sufferers really really feel heard. A part of using this technique has been partaking with communities.
Affected person advocacy by way of on-line communities has been important in reshaping the medical panorama for sufferers. Specifically, social media platforms have offered sufferers with a variety of alternatives to advocate for his or her well being whereas partaking with, studying from, and educating others. It has additionally supplied platforms for extra weak affected person populations, together with ladies and minorities, to be heard and create their niches, resulting in extra recognition of range throughout the rheumatology neighborhood.
Autoimmune Affected person Communities
As an autoimmune affected person myself, I do know that the fixed battle to coordinate care and self-manage circumstances can really feel isolating and scary. Nevertheless, many on-line affected person communities provide neighborhood assist from others present process comparable struggles. We’ve gathered a listing of teams that we predict can be value trying out. These fluctuate in measurement and specificity of focus, so that you’ll probably discover a area of interest that matches you!
Autoimmune and Single-Illness-Targeted Affected person Communities
Sensible Sufferers hosts greater than 100 affected person communities on all kinds of medical subjects, sufferers sharing their data, an underutilized useful resource. They’ve a normal “Autoimmune” neighborhood and lots of particular autoimmune and associated illness subjects akin to rheumatoid arthritis, lupus, and fibromyalgia. Extra subjects embody drugs, symptom clusters like POTS & dysautonomias, neurodegenerative illnesses, cancers, and extra.
RheumatoidArthritis.internet has been round since 2013, and it’s a complete web site that gives entry to neighborhood boards, well being sources, weblog posts, and normal details about RA. It’s also possible to message affected person advocates and search further instructional sources.
Well being Union is the father or mother of RheumatoidArthritis.internet. They’ve hyperlinks to many different communities for various circumstances and illnesses on the backside of their residence web page, which features for significant conversations surrounding affected person well being.
MyHealthTeam offers entry to many various social networks for various circumstances and illnesses. These large-scale communities provide sufferers the chance to get their questions answered, learn up on related medical articles, and converse with one another.
Fb Teams
Fb teams embody many affected person communities. These provide folks with medical diagnoses alternatives to attach, educate themselves and others, and discover a neighborhood that shares their expertise.
The Rheumatoid Arthritis Discussion board Assist Group posts a variety of content material from tricks to alleviate continual ache to sharing experiences. This can be a extremely energetic Fb group with over 9,000 members, the place folks submit and reply every day to one another.
This group, composed of practically 8,000 members, particularly caters to moms who battle with RA. The neighborhood is concentrated on serving to moms with ache and illness administration whereas caring for kids, providing an area to vent frustrations and search assist and assist.
This Fb group is a supportive neighborhood of over 40,000 people with RA and their family members. It gives a platform for sharing experiences, providing assist, and exchanging details about coping methods and managing signs. This can be a personal group, so you will need to be a part of after which wait to be accepted by the admin.
This group includes a large neighborhood of individuals with psoriatic arthritis, notably those that select to “LIVE WITH” it, whereas additionally providing an area for many who might know somebody with the situation. Comprising round 4,000 folks, this group is meant as an area of encouragement and resource-seeking.
This can be a Fb group of about 20,000 members and is a neighborhood the place folks can share their tales about their PsA journeys, along with searching for recommendation/assist from others.
Consisting of about 10,000 folks, This assist group for these residing with psoriatic arthritis is personal, so you will need to await approval earlier than formally becoming a member of.
The objective of the Lupus Assist group is to offer assist, empathy, recommendation, and assist for folks residing with Lupus. This can be a personal group, so you’ll have to get permission to affix from the admin.
Dwelling with Lupus helps over 12,000 people navigating their Lupus journey. Like different pages, this can be a personal group the place you will need to get approval earlier than becoming a member of.
Reddit Communities
Though extra idiosyncratic than different platforms, Reddit may also be helpful for sufferers, with a couple of distinctive benefits. Reddit communities’ various and idiosyncratic person bases, and up/downvoting system promotes the most well-liked info to point out you first. It might be smart to fact-check something you learn on Reddit (true for different platforms, too, if much less so).
This subreddit offers a supportive setting for people residing with RA and associated inflammatory illnesses. Whereas it doesn’t provide medical recommendation, it fosters dialogue and neighborhood amongst members. Analysis posts additionally have to be accredited by moderators earlier than being shared.
This discussion board, with over 30,000 customers, helps folks with Lupus to attach, share experiences, and construct a neighborhood. Whereas it welcomes these searching for prognosis, people with different autoimmune circumstances, caretakers and family members, it prioritizes lupus sufferers, sustaining respect in a protected area for everybody.
This subreddit has over 20,000 members; most customers focus on their signs and experiences with medical therapy. This discussion board offers recommendation, assist, and care however doesn’t diagnose, interpret check outcomes, or present medical recommendation.
Rising robust at practically 50,000 customers, this discussion board serves as a platform for discussing varied elements of psoriasis. These embody sharing private experiences, searching for recommendation, and providing assist. Whereas all posts are welcome, see the standard disclaimer about medical recommendation; people are inspired to seek the advice of docs for steering.
This subreddit, composed of 13,000 members, is a spot for folks to study extra about PsA. It additionally gives a platform relate to others with PsA wherever they’re of their well being journeys.
For Rheumatologists
For working towards rheumatologists, some communities assist communications with different practitioners to share totally different views.
Rheumatology.org is the official web site of the American School of Rheumatology (ACR). It’s a complete useful resource hub for professionals and sufferers fascinated with rheumatology. It offers all kinds of data on rheumatic illnesses. For instance: analysis updates, medical tips, instructional supplies, {and professional} growth for rheumatologists and different healthcare suppliers. Moreover, it gives sources and assist for sufferers. For instance, details about varied rheumatic circumstances, therapy choices, and suggestions for managing signs.
This Fb group is devoted to rheumatologist physicians or fellows to offer mentorship for people in personal practices. This intends to encourage present and future rheumatologists to start out and proceed inside their specialty. This can be a personal group so you will need to get approval earlier than you be a part of.
The Rheumatology group offers physicians and healthcare professionals fascinated with rheumatology and medical immunology a discussion board for collaboration. It offers a possibility for rheumatologists and different medical professionals to attach, share info, and announce related information. Moreover, non-medical people are welcome to affix, ask questions, and contribute feedback. This can be a personal group, so one should acquire permission to affix.
This Fb group is principally for rheumatologists and different specialists to attach and collaborate. Medical college students and sufferers are welcome to affix, however all should get admin approval to affix.
Conclusion
Within the motion to amplify the affected person voice, affected person communities provide invaluable assist and sources for people navigating comparable well being challenges. Whether or not on Fb, devoted web sites, or platforms like Reddit, these communities foster connection and understanding. I wholeheartedly encourage becoming a member of these teams to facilitate significant exchanges of data and encouragement all through your autoimmune journey!
Moreover, I encourage you to take a look at how far the affected person voice has really advanced up to now ten years; our earlier work from a Stanford MedicineX Workshop Survey is a reminder of how simply affected person voices have been as soon as dismissed. We now have really come thus far to have the ability to put sufferers in a brand new place the place they will comfortably be their very own advocates.
On-line communities and social media influencers have offered new platforms for affected person voices. Such improvements permit people to amplify their voices and join with communities. Rheumission goals to make the most of the ability of those influencers and their communities in our modern, specialised patient-first strategy. Keep tuned as rheumission continues its launch section!
Lastly, we encourage you to find robust voices in the neighborhood: affected person influencers and leaders. We delved extra into these wonderful advocates, notably robust influencers and digital well being leaders. We encourage AIID influencers and affected person advocates to debate their views and views on care administration. Listening to from sufferers, particularly public advocates, helps us velocity prognosis and enhance care.
Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda
We strategy these thought management posts from our multi-lens views.
DrBonnie360: Digital/digital well being guide, medical dentist, Wall Road analyst, affected person & advocate.
Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.
Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Scholar at UCLA.
Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Scholar at UCLA
Strategic Consulting & Skilled Providers
We offer skilled consulting companies to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our shoppers enhance look after AIID sufferers and scale back prices. Knowledgeable by affected person and caretaker views, we urge buyers & shoppers to combine one of the best of digital, typical, and useful medication into AIID care supply.
We assist our shoppers leverage digital improvements into V1C for AIID sufferers.
Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.
We now have many years of expertise in finance, advertising, and communications for dozens of healthcare and life sciences organizations, rising and established.
Our backgrounds embody medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.
Contact us that will help you map your market panorama and perceive sufferers’ unmet wants. Additionally, we may also help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we have been facilitating digital periods. We additionally create compelling content material: articles, weblog posts, collateral, e-books, net copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.
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