Well being Innovation Leaders (Half II) %

In my mission to attach with autoimmune advocates, I’ve additionally collaborated with forerunners of affected person advocacy and healthcare innovation. Advocacy spans past social media, and delves into the sectors of digital well being, consulting, and innovation. On this second half, we’ll dive deeper into the dynamic world of advocacy, the place new leaders and innovators are revolutionizing the affected person group! 

Affected person Expertise and Healthcare Communication Specialists

Firstly, Amanda Osowski is a notable determine with over a decade of expertise in healthcare communication. As a affected person expertise chief and copywriter, she leverages her writing abilities to spotlight narrative medication. Narrative medication makes use of private narratives to enhance affected person care and well being outcomes. Moreover, her work spans a number of well being professionals and organizations just like the Autoimmune Affiliation and Affected person Genuine. Rheumission is proud to face beside her as a champion of narrative medication’s mission to amplify the affected person’s voice. 

Well being Branding and Healthcare Design Specialists

Sarah Stern is a power to be reckoned with within the autoimmune illness house. Along with her unparalleled ardour and efforts, she’s reshaping well being branding and making healthcare data extra accessible and digestible. As a robust supporter of rheumission, she continues to create a pathway to humanizing healthcare. I stay up for her pivotal function as a part of rheumission’s Affected person Advisory Council. 

Affected person Advocacy Leaders

Moreover, the leaders of affected person advocacy and well being innovation are propelling us towards a brighter future. With their sturdy management abilities and lived experiences, they’re occupying pivotal roles within the healthcare house.

Arianna Blaine is a PsA and PsO affected person advocate with expertise within the digital well being realm together with consulting, medical program technique, and product administration. She advocates for extra help and analysis, particularly for reimagining autoimmune illness. Her experience lies in growing evidence-based merchandise, particularly in end-to-end mission administration and cross-functional stakeholder administration for the go-to-market launch course of. 

Jen Horonjeff and Ronnie Sharpe of Savvy Cooperatives have been important in putting sufferers on the forefront of healthcare. They created a platform aiming to bridge the hole between well being innovators and people with lived experiences of sickness. Their platform connects sufferers with healthcare professionals to collaborate on patient-centered options, emphasizing empathy and understanding in healthcare innovation. Specifically, rheumission has utilized it in founding our Affected person First Technique, standing on the forefront of our patient-first mission.

Following her prognosis with a number of autoimmune ailments, Lilly Stairs, has discovered her technique to the forefront of affected person advocacy. Because the founding father of Affected person Genuine and the Persistent Boss Collective, she dedicates herself to the autoimmune group. With a background in advertising and marketing and stakeholder relations, she collaborates with pharmaceutical corporations to create skilled improvement occasions. Her Persistent Boss Collective goals to help formidable businesswomen residing with autoimmune ailments to pursue their targets whereas prioritizing their well being. 

Well being Innovation Leaders

Moreover, rheumission has additionally had the pleasure of partnering with people corresponding to Andrea Kaufman Wool, CEO of Autoimmune Robust, and Tiffany Westrich-Robertson, CEO of the Worldwide Basis for Autoimmune & Autoinflammatory Arthritis (AiArthritis). Andrea affords an internet health routine that gives a protected and efficient method to managing autoimmune illness and persistent ache. Along with her various set of abilities starting from advertising and marketing to mission administration, Tiffany focuses on enterprise relationships, patient-centered analysis and schooling, and coverage points associated to entry to care. 

Molly Fuller has been supporting progress within the autoimmune group by human-centered and repair design strategies and product administration. She has utilized technique and enterprise planning, metric and knowledge design, and product administration methods to enhance healthcare experiences. 

Because the founding father of Pictel Well being, Katie McCurdy has devoted her firm to visually narrating affected person tales. By way of collaborative sketching, consumer engagement, problem-solving, and visualization, she has designed cell and internet merchandise. These merchandise have been provided to varied healthcare stakeholders, enhancing service experiences throughout the healthcare system.

Conclusion

In conclusion, one factor is abundantly clear: the rheumatology group has created a sea of passionate people devoted to reshaping the panorama of autoimmune ailments. Rheumission stands as a beacon of change, uniting passionate people devoted to a testomony to the facility of collaboration and compassion. By way of our collective efforts, we’re igniting a revolution in autoimmune care, reworking healthcare for the higher.  

Pushed by the net data explosion, sufferers have develop into extra educated and proactive of their care, transcending their conventional passive recipient roles. Immediately, many sufferers actively take part in significant discussions about therapy choices, contribute to the co-creation of their care plans, and share decision-making with major and specialist clinicians. Sufferers have gotten companions in their very own care, and the function of influencer advocacy on this change can’t be understated.

Moreover, as we embark on this collective mission, I encourage you to hitch us in exploring rheumission and witnessing firsthand how we’re serving to to revolutionize the autoimmune panorama. Collectively, allow us to catalyze change, elevate voices, and form a future the place autoimmune ailments are met with understanding, help, and innovation! 

Authors: DrBonnie360, Ellen M. Martin, Sydney Hahn, & Madeline Pineda

We method these thought management posts from our multi-lens views. 

• • DrBonnie360: Digital/digital well being advisor, medical dentist, Wall Road analyst, affected person & advocate.  

• • Ellen M. Martin: Advisor, editor, life science finance/IR/marcomm, autoimmune caretaker.

• • Sydney Hahn: Digital well being fairness analysis intern, Human Biology and Society & Mathematical Biology Undergraduate Pupil at UCLA.
  • Madeline Pineda: Digital well being fairness analysis intern, Psychobiology Undergraduate Pupil at UCLA

Strategic Consulting & Skilled Companies

We offer skilled consulting providers to funding, rising, and established corporations. Our work bridges silos and fills gaps to assist our purchasers enhance look after AIID sufferers and cut back prices. Knowledgeable by affected person and caretaker views, we urge traders & purchasers to combine the very best of digital, typical, and practical medication into AIID care supply.

• • We assist our purchasers leverage digital improvements into V1C for AIID sufferers.

• • Our material experience consists of: oral well being, microbiome, autoimmune affected person journeys, aggressive panorama evaluation, strategic positioning & messaging, digital well being, and self-hacking.

• • We’ve many years of expertise in finance, advertising and marketing, and communications for dozens of healthcare and life sciences organizations, rising and established.

• • Our backgrounds embrace medical dentistry, osteology, biotech IR/PR, marcomm, content material creation, strategic consulting, and autoimmune advocacy.

Contact us that can assist you map your market panorama and perceive sufferers’ unmet wants. Additionally, we might help you make clear and articulate your organization’s market place and differentiators. Lengthy earlier than COVID-19, we had been facilitating digital classes. We additionally create compelling content material: articles, weblog posts, collateral, e-books, internet copy, and white papers. Our Autoimmune Join/DrBonnie360 web site showcases our personal content material.

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